The Croydon Sickle Cell and Thalassaemia Support Group is a registered charity based in Croydon, London in the county of Surrey. Our members include individuals affected with Sickle Cell and Thalassaemia, their families, carers, supporters and professionals
In 1998 the Sickle cell centre was opened for the specialist Nurses, our support group moved in with the nurses and since that time has built up a very good working relationship and have gained an outstanding reputation with the borough. Our support group became a Registered Charitable organisation in September 2003.
Our passion: We want to live in a world where sickle cell and Thalassaemia are no longer the daily challenge for some and where no one knowingly dies from the condition. We’re working to make this happen through proving valuable information and data for research, award-winning support group services, campaigns to raise awareness and reduce the stigma attached to the disorder.
Croydon Sickle Cell and Thalassaemia support group was established in 1992. The group is run by dedicated volunteers including service users.
The main aim of our efforts is to help improve the quality of life for affected individuals, their families and carers. We also promote awareness of sickle cell and thalassaemia in the community. There are a number of fundraising events to raise funds for our activities with both the young and older affected individuals.
Our group has consistently strove to achieve and remain focused on the objectives set out in our constitution. These are:
- The relief of need, hardship and distress of people affected by sickle cell and thalassaemia, their families and their carers, so as to empower them and improve their quality of life.
- The advancement of education and training, in particular to those affected so as to improve their opportunities to find gainful employment.
- The preservation of good health for individuals with sickle cell and Thalassaemia.
Hospital visits: Our DBS checked and trained executive committee members are available to visit at your request, they can also supply emergency hospital packs including essential toiletries.
WHAT WE DO
Talks: We host regular talks on how to manage your health, how your body works as well as advice sessions on benefits. One to one meetings to discuss benefits can also be arranged on request
Trips: Planned trips to places of interest for service users, siblings and family members
Awareness: We aim to provide a constructive awareness of what is sickle cell as well as thalassaemia.